Publications
15 min read
Patient experience journey mapping: established public health methodology or strategic decision-making element in a patient-driven healthcare?
By exploring the combined methodology, this study provides a detailed landscape of patient experience research evolution, clarifies terminology, defines categories of PED, highlights the purposes for PED generation and PEJM development, and substantiates the PEJM conceptual model based on the proposed multidimensional ontology.
PED is critical driver for value-based healthcare and involves diverse data types capturing people lived experiences. Patient engagement is essential for generating robust PED. Over the long period of time, PED was reported and published inconsistently across several disease and therapeutic areas also being disconnected from pathway research and analyses. Methodological unclarity and terminology challenges exist around pathways, care continuums, patient journeys, and PEJM.
PEJM is evolving as a strategic approach across healthcare sectors, supported by recent initiatives such as PFMD PED Navigator and US NHC PEM Toolbox.
Patient Experience Journey Mapping (PEJM) consolidates heterogeneous PED sources into actionable insights and recommendations to provide disease awareness and education for patient communities, inform healthcare decision-making, strategies, planning, HTA and regulatory submissions.
Expert input and bibliosemantic research over the period of 20 years informed the development of the PEJM conceptual model driven by the 8 PED attributes. Although this model summarizes existing approaches and good practices, it could be implemented further through interactive digital solutions. Additional PEJM research and more detailed guidance is anticipated to address regulatory and HTA requirements in terms of PED submissions and appraisal procedures.
https://journals.uzhnu.uz.ua/index.php/health/article/view/1535/1610